Spare the donor and donee, leave them alone

A Beijing law worker saving a Shanghai girl's life
not once but twice over the last two years by unselfishly donating her
bone marrow and stem cells is a classic heart-warming story that the media
wouldn't dare miss.(China Daily)
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BEIJING, April 25 -- A Beijing law worker saving a Shanghai girl's life not
once but twice over the last two years by unselfishly donating her bone marrow
and stem cells is a classic heart-warming story that the media wouldn't dare
miss.

But there is one thing I find lacking in the story - precaution to guard
the long established international practice guaran-teeing the privacy of the
donor and the recipient, at least for one year after the transplant.

The privacy policy requires bone marrow donations to be anonymous for at
least one year or two years in many countries in Europe. Donors and recipients
may mutually meet afterwards, according to Wang Chun, director of the Blood
Department of Shanghai No 1 People's Hospital, where Xiao Ying received her
treatment. Otherwise, there are chances of disputes.

There have been instances when a donor has demanded compensation from his
recipient or a recipient has begged his donor for another donation, in case of a
relapse, which could sometimes end up very ugly, said Wang.

However, based on his personal estimation, Wang said at least 50 percent of
his patients get to meet their donors soon after a transplant is performed.

"It is not difficult to find out if one wants to," said the doctor. "It is
all over the media."

Du Shiqiang, an official from China Marrow Donor Program (CMDP), an
organization run by China Red Cross Society, seeking compatible donors for
people with forms of leukemia, said CMDP had been strictly adhering to the
international privacy regulation ever since its inception in 2001.

Du said his organization would also make sure that the donor and the
recipient are in two different hospitals to avoid all chances of direct contact.

"It is understandable for people to feel a real connection once a
transplant occurs between the two," said Du. "In that case, we would advice them
to exchange anonymous correspondence through us."

Du admits that there are times when CMDP would bring a donor and his
recipient together for a recruitment drive for bone marrow donors, which is very
necessary since bone marrow donation has just started in China. But the number
has been strictly limited to only a few, not more than 10 so far out of over
1,100 transplants arranged by CMDP over the past few years.

It is hard to acknowledge that the privacy policy is widely ignored in
China though. Should we blame the media for that?

Yes, and no.

You may say more than 1,100 donations is not a small number. But if spread
over the past eight years and divided among different regions across the vast
country of China, each donation makes history in the area where a donor lives,
says Du.

"Believe it or not, each of the 1,100-odd donors from CMDP has received at
least one award, either from his employer or the local government," said Du.

Without exception, the local media would pick up stories related to such
donations, digging into every detail of the donor's life for proofs that he or
she is an exemplary person.

I have never doubted about the media's intention to promote life-saving
bone marrow donations in China, but I doubt if such reporting would actually
achieve expected results.

On the one hand, both the donor and the recipient are tempted to break the
privacy policy as it is so easy to find each other, which might lead to
unpleasant scenarios as Wang mentions.

We are living in an era when news is never actually local once it's up on
the web.

On the other hand, I doubt if a donor's image as a hero is proper to
promote bone marrow donations.

"We don't really like the way the media portrays a donor as a hero as they
tend to exaggerate the difficulty he has to face or sacrifice. This can be
misleading as the general public might think it is the responsibility of heroes,
not ours as common folks," said Du.

"If there is any difference between a donor and other people, it is that
they go one step further to extend their helping hands by registering themselves
with CMDP and choose to help those in need."

I can't agree more with Du. I've read stories depicting a donor suffering
from great pain and horrible reactions when stem cells are collected from his
body. Had I never been a witness to several bone marrow collections, I would
step back from any donations because of the exaggerated coverage.

However, I don't think the Chinese media alone should be blamed, even
though they could have taken a lesson or two from their counterparts in Western
countries.

The difference is, in the West they wait, we don't.

A *** search online reveal many stories related to bone marrow donations
in countries like the United States or Germany. Most are written one year or
more, after both parties are allowed direct contact.

As I read those stories, I feel greatly touched by humanity-based
generosity and gratitude beyond words can express, and by how the miracle of
chance has created a strong bond between two strange people.

As a journalist myself, I am sure that most of my Chinese colleagues would
agree that this is better journalism -- showing respect for the ethical norms
related to bone marrow donations while sticking to professionalism by telling
stories in a true and touching way, which would, in turn, promote goodwill in
the society.

I look forward to reading such stories in the coming years like, a donor
has finally met his bone marrow recipient, both healthy and happy for the first
time after waiting for two years, wondering about each other.

(Source: China Daily)